The E.WE Foundation is an ABSWE approved Continuing Education Provider.
The E.WE Foundation offers three core programs, creating a comprehensive framework of care for individuals affected by rare and complex conditions. Grounded in lived experience and informed by evidence-based practices, our programs empower individuals and organizations to make meaningful, lasting impact in the rare disease ecosystem.
LEAP is a comprehensive learning program that empowers patients, caregivers, and healthcare professionals through education, health literacy, and informed decision-making. Through workshops, webinars, and digital learning opportunities, LEAP bridges knowledge gaps and equips individuals with tools to navigate rare disease care.
ZEBRA offers a safe space for individuals and families to foster emotional and mental wellness. From patient and caregiver peer support to comfort care initiatives, ZEBRA helps individuals cope with the psychological impact of life-altering diagnoses, grief, and loss.
STRIPE offers temporary financial assistance to families affected by Trisomy 18, and facing financial hardship. Beyond emergency funding, STRIPE connects families with counseling, education, and other essential resources to promote long-term stability and well-being.
Camp E.WE: Beyond the Backyard
Camp E.WE is a long-term initiative designed to provide a medically safe, inclusive space where children and families living with Trisomy 18 can find joy, rest, and connection. Through accessible events, adventure days, and community connections, families experience belonging, joy, and support beyond the challenges of daily caregiving.
Future Highlights:
- Medically supported camp experiences tailored for children with Trisomy 18
- Opportunities for inclusive recreation, relaxation, and family bonding
- A fully sponsored program prioritizing equity and access
Camp E.WE is part of our long-term strategic plan, underscoring our belief that every child deserves a place to feel seen, supported, and celebrated.
