Literacy, Education, & Advocacy Program
LEAP is an instructional resource program promoting health literacy, community education, and patient advocacy. The LEAP program focuses on optimizing health and social service access to improve the overall well-being of individuals, families, and communities. Learn more about LEAP.
*The E.WE Foundation is an approved Alabama State Board of Social Work Examiners Continuing Education Provider.
Comfort Care Program
ZEBRA is a comfort care program offering support and end-of-life solutions to families living with Edwards Syndrome. Our comfort care program addresses physical comfort, daily care, and emotional & spiritual support. ZEBRA offers resources, intervention, counseling, and bereavement support to assist with addressing these needs. Contact us to speak with a ZEBRA Ambassador.
Financial Assistance Program
STRIPE is a economic assistance program designed to help with the financial burden associated with rare medical complexities and specialized medical care. Families facing economic hardship – due to Edwards Syndrome – can submit an assistance request form.
CAMP E.WE provides a place of fun and relaxation for children and families affected by Edwards Syndrome and other rare diseases. Specifically designed for individuals with medical complexities, CAMP E.WE offers a place of belonging in a medically inclusive environment. CAMP E.WE is a sponsored program. All families will attend CAMP E.WE free of charge.