Literacy, Education, & Advocacy Program

LEAP is an educational resource program promoting health literacy, community education, and patient advocacy. The LEAP program focuses on optimizing health and social service resources to improve the overall well-being of individuals, families, and communities. Learn more about LEAP.


End of Life Solutions Program

ZEBRA is an end-of-life solutions program providing support to families facing infant & child loss due to Edwards Syndrome. End of life care addresses physical comfort, daily care, and emotional and spiritual support. ZEBRA offers intervention, counseling, and bereavement resources to assist with addressing these needs. Contact us to speak with a ZEBRA Ambassador.


Financial Assistance Program

STRIPE is a financial assistance program designed to help with out-of-pocket medical expenses. Due to the high cost associated with medical complexities and specialized medical care, families facing economic hardship – due to Edwards Syndrome – can submit an assistance request form.

Donate to STRIPE.


Summer Camp

CAMP E.WE provides a place of fun and relaxation for children and families affected by Edwards Syndrome and other rare diseases. Specifically designed for individuals with medical complexities, CAMP E.WE offers a place of belonging in a medically inclusive environment. CAMP E.WE is a sponsored program. All families will attend CAMP E.WE free of charge.