Learn. Empower. Advocate. Participate.
The E.WE Foundation’s LEAP Program is an accredited continuing education initiative designed to increase health literacy, empower patient advocacy, and foster community engagement—especially among rare disease and medically complex populations. LEAP serves both families and the professionals who support them, equipping all participants with the tools to make informed, confident healthcare decisions while navigating the complex realities of access, cost, and equity.
Why LEAP Matters
Health literacy is more than understanding—it’s empowerment. By bridging the gap between knowledge and action, LEAP supports families and equips the professionals who serve them to advocate for better outcomes and improved quality of care in their communities.
What LEAP Offers
✅ Comprehensive Health Education
We simplify complex topics. From understanding medical terms and diagnoses to decoding insurance policies, LEAP delivers plain-language content accessible to families, caregivers, and professionals alike.
✅ Hands-On Learning
Interactive workshops and webinars cover real-world topics such as:
- Navigating the healthcare system
- Managing healthcare costs
- Accessing community resources
- Preparing for major health decisions
✅ Patient Advocacy Skills
LEAP helps participants—both families and professionals—become confident advocates. Training includes:
- Effective communication with providers
- Understanding patient rights
- Participating in shared decision-making
✅ Community Building
Local events and virtual spaces encourage connection, story-sharing, and mutual support, fostering stronger learning through community.
✅ Digital Resource Library
24/7 access to toolkits, videos, articles, and interactive content—designed to meet learners wherever they are and grow with them.
LEAP Initiatives
Our LEAP initiatives offer actionable learning, advocacy skills, and community empowerment. Each initiative is delivered through workshops, trainings, webinars, and digital resources tailored to meet the needs of participants across healthcare, education, and advocacy settings.
Workshops & Trainings
Child Abuse & Neglect Prevention
Workshops and trainings empower families, caregivers, and professionals to recognize, prevent, and respond to child abuse and neglect. Participants learn practical strategies, reporting processes, and ways to foster safe environments for children with disabilities and other vulnerable populations.
E.WE Learning: A Continuing Education Program
Accredited CEU modules provide healthcare professionals, caregivers, and advocates with structured learning opportunities. These sessions cover rare disease care, patient advocacy, health literacy, and ethical decision-making, equipping participants with knowledge and skills for lifelong learning.
Health Equity Community Workshops
Training sessions address disparities in healthcare access, quality, and outcomes, particularly for populations with rare and medically complex conditions. Participants explore systemic challenges and learn strategies to improve equitable care in their communities.
Newborn Screening
Interactive trainings and workshops support families and professionals in navigating newborn screening processes, understanding results, and advocating for equitable access to early detection programs. Sessions focus on the practical, ethical, and policy considerations of screening rare and high-mortality conditions.
Preventive Health Planning
Workshops encourage proactive health conversations and early detection through multigenerational awareness. Families and professionals learn how to collect, document, and use family health histories to inform care decisions and preventive strategies.
Youth Mental Health First Aid (YMHFA)
Structured training sessions teach families, caregivers, educators, and professionals how to recognize and respond to mental health challenges in children and adolescents. Participants gain practical skills to provide initial support, connect youth to resources, and promote resilience within vulnerable communities. Participants who successfully complete this training will receive a 3-year Youth Mental Health First Aid certification through the National Council for Mental Wellbeing.
Experiential Learning & Events
Internship Program
Provides hands-on learning for future leaders in health advocacy, education, and community support.
LEAP into Advocacy Virtual Summit
An annual, CE-accredited conference connecting experts, families, and organizations to spotlight innovation and collaboration in rare disease advocacy.
The E.WE Foundation 