2023 LEAP into Advocacy Summit


The LEAP into Advocacy Virtual Summit brings together rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies to discuss the latest rare disease innovations, patient advocacy, public policy, and actionable strategies to accelerate change.

This year’s theme is Expanding How We Approach Rare Disease Advocacy, Education, and Public Policy.

Session topics:

  • Leveraging Patient Experiences to Advance Research and Next Generation Medicine
  • Normalizing Mental Health: Shifting the Narrative from Stigma to Stability
  • The Intersectionality of Advocacy and Public Policy: How Your Story Impacts Legislative Decision-Making
  • Preparing to Transition from Pediatric to Adult Healthcare: The Good & Bad to Independent Care Coordination

Join us Thursday, June 29, 2023, 10:00am – 2:30pm CST.

*Speaker information will be shared soon!

Did you miss our 2022 summit? Check out the replay below!

The E.WE Foundation is an approved Alabama State Board of Social Work Examiners Continuing Education Provider. This event is approved for 4 CEUs. Eligible participants should only claim the credit commensurate to their attendance.