The E.WE (/ē/·/wē/) Foundation is an Alabama-based nonprofit dedicated to providing resources, support, and community for families affected by Trisomy 18 (Edwards Syndrome) and other rare and complex conditions.
Courtesy of WLRH | Huntsville Public Radio
Elijah Wayne Edwards, Living with Full Trisomy 18
Understanding Trisomy 18 & Rare Diseases
A rare disease is any condition that affects fewer than 200,000 people in the United States. Trisomy 18, or Edwards syndrome, is a rare genetic condition that happens when an extra copy of chromosome 18 is present in some or all of the body’s cells. This additional genetic material can disrupt typical development, resulting in significant health challenges. Trisomy 18 affects approximately 1 in 5,000-6,000 live births.
Three Programs. One Mission.
The E.WE Foundation is proud to be an accredited continuing education provider.
The E.WE Foundation offers programs that address key areas of need and offers a comprehensive framework of care for families and professionals affected by rare and complex conditions. Grounded in lived experience and informed by evidence-based practices, our programs empower individuals and organizations to make meaningful, lasting impact in the rare disease ecosystem—one family, one leader, and one conversation at a time.
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The E.WE Foundation 