The E.WE (/ē/·/wē/) Foundation is a global healthcare advocacy organization established to provide resources and support to families impacted by Trisomy 18 (Edwards Syndrome) and other rare diseases.
Courtesy of WLRH | Huntsville Public Radio
Elijah Wayne Edwards, Full Trisomy 18, 3/28/17 –
WHAT IS EDWARDS SYNDROME, TRISOMY 18?
Edwards syndrome, also known as Trisomy 18, is a genetic disorder caused by the presence of an extra copy of chromosome 18 in some or all of the body’s cells. Normally, humans have two copies of each chromosome (one from the mother and one from the father), resulting in a total of 46 chromosomes in each cell. However, individuals with Edwards syndrome have three copies of chromosome 18, which disrupts the normal development of the body and leads to various medical and developmental issues.
WHAT IS A RARE DISEASE?
A rare disease, also known as an orphan disease, is a medical condition that affects a relatively small number of people when compared to more common diseases. The specific criteria for designating a disease as “rare” can vary from country to country, but in the United States, for instance, a disease is considered rare if it affects fewer than 200,000 people. In the European Union, a disease is considered rare if it affects fewer than 1 in 2,000 people.
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