The E.WE (/ē/·/wē/) Foundation is an IRS approved 501(c)(3) healthcare advocacy organization established to support families affected by Edwards Syndrome, commonly known as Trisomy 18.
Courtesy of WLRH | Huntsville Public Radio
WHAT IS EDWARDS SYNDROME?
Edwards Syndrome, commonly known as Trisomy 18, is 1 of more than 7,000 rare diseases occurring at a rate of 1 in every 3,315 births according to the Centers for Disease Control and Prevention. Trisomy 18 is a genetic chromosome abnormality caused by an error in cell division. When this happens, instead of the normal chromosome pair, an extra chromosome 18 results. Due to several life-threatening medical problems, many individuals with Trisomy 18 die before birth or within their first month.
Elijah Wayne Edwards, Full Trisomy 18. Elijah was born March 28, 2017. He is 4 years old.
The E.WE Foundation is an approved Continuing Education Provider.
PROGRAMS
LEAP is a resource program promoting health literacy, community education, patient advocacy, and public policy.
ZEBRA is a comfort care & end-of-life solutions program that supports families living with life-limiting diagnoses, medical complexities and special health needs.
STRIPE is an economic assistance program designed to help with the financial burden associated with caring for individuals living with Trisomy 18.
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10th Annual WEGO Health Advocating for Another Winner
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The E.WE Foundation 