The E.WE (/ē/·/wē/) Foundation is an IRS approved 501(c)(3) healthcare advocacy organization established to support families affected by Edwards Syndrome, commonly known as Trisomy 18.
WHAT IS EDWARDS SYNDROME?
Edwards Syndrome, commonly known as Trisomy 18, is 1 of more than 7,000 rare diseases occurring at a rate of 1 in every 3,315 births according to the Centers for Disease Control and Prevention. Trisomy 18 is a genetic chromosome abnormality caused by an error in cell division. When this happens, instead of the normal chromosome pair, an extra chromosome 18 results. Due to several life-threatening medical problems, many individuals with Trisomy 18 die before birth or within their first month.
Elijah Wayne Edwards, Full Trisomy 18. Elijah was born March 28, 2017. He is 4 years old.
The E.WE Foundation is an approved Continuing Education Provider.
LEAP is a resource program promoting health literacy, community education, patient advocacy, and public policy.
ZEBRA is a comfort care & end-of-life solutions program that supports families living with life-limiting diagnoses, medical complexities and special health needs.
STRIPE is an economic assistance program designed to help with the financial burden associated with caring for individuals living with Trisomy 18.
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