HOME

The E.WE (/ē/·/wē/) Foundation is an IRS approved 501(c)(3) healthcare advocacy organization established to support families affected by Edwards Syndrome, commonly known as Trisomy 18.

Public Service Announcement
Courtesy of WLRH | Huntsville Public Radio
Learn More About Rare Disease Week

WHAT IS EDWARDS SYNDROME?

Edwards Syndrome, commonly known as Trisomy 18, is 1 of more than 7,000 rare diseases occurring at a rate of 1 in every 3,315 births according to the Centers for Disease Control and Prevention. Trisomy 18 is a genetic chromosome abnormality caused by an error in cell division. When this happens, instead of the normal chromosome pair, an extra chromosome 18 results. Due to several life-threatening medical problems, many individuals with Trisomy 18 die before birth or within their first month. 


Elijah Wayne Edwards, Full Trisomy 18. Elijah was born March 28, 2017. He is 4 years old.


LEAP PROGRAM
ZEBRA PROGRAM
STRIPE PROGRAM

The E.WE Foundation is an approved Continuing Education Provider.

PROGRAMS

LEAP is a resource program promoting health literacy, community education, patient advocacy, and public policy.

ZEBRA is a comfort care & end-of-life solutions program that supports families living with life-limiting diagnoses, medical complexities and special health needs.

STRIPE is an economic assistance program designed to help with the financial burden associated with caring for individuals living with Trisomy 18.



You shop. Amazon donates.


JOIN OUR COMMUNITY!

Stay connected by joining our mailing list. We will never spam you. We respect your privacy.

By submitting your email address, you agree to receive email correspondence from The E.WE Foundation.


10th Annual WEGO Health Advocating for Another Winner




TEXT ‘GIVE2EWE’ TO 44-321 TO DONATE