The E.WE (/ē/·/wē/) Foundation is an IRS approved 501(c)(3) healthcare advocacy organization established to support families affected by Edwards Syndrome, commonly known as Trisomy 18.

Public Service Announcement
Courtesy of WLRH | Huntsville Public Radio

WHAT IS EDWARDS SYNDROME?

Edwards Syndrome, commonly known as Trisomy 18, is 1 of more than 7,000 rare diseases occurring at a rate of 1 in every 3,315 births according to the Centers for Disease Control and Prevention and in about 1 in 5,000 live births according to the National Institutes of Health, each year in the United States. Trisomy 18 is a genetic chromosome abnormality caused by an error in cell division. When this happens, instead of the normal chromosome pair, an extra chromosome 18 results. Due to several life-threatening medical problems, many individuals with Trisomy 18 die before birth or within their first month.

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Elijah Wayne Edwards, Full Trisomy 18. Elijah was born March 28, 2017. He is 5 years old.

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OUR PROGRAMS

Alabama State Board of Social Work Examiners Continuing Education Provider

LEAP is a resource program promoting health literacy, community education, patient advocacy, and public policy.

ZEBRA is a comfort care & end-of-life solutions program that supports families living with life-limiting diagnoses, medical complexities and special health needs.

STRIPE is an economic assistance program designed to help with the financial burden associated with caring for individuals living with Trisomy 18.

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Want to make a difference?

We are expanding and looking for support! We are seeking several individuals to help our growing organization. We have partnered with VolunteerMatch to streamline our volunteer recruitment process. If you’re interested and want to know more, click the “see opportunities” button below! Remote opportunities are available.

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