A family story can change a health story.
A rare diagnosis often raises questions about family, genetics, and health patterns. Understanding Family Health History empowers families to better understand and use family health information to improve care, prevention, and communication.
Knowing your family’s health story can:
- Identify genetic or hereditary conditions
- Inform early screening and prevention strategies
- Empower personal healthcare decisions
- Improve communication with providers
- Strengthen family bonds and health literacy
Talk to Your Family. Know Your History. Empower Your Health.
For families impacted by rare diseases, documenting family health history can be a powerful tool for understanding patterns of illness, recognizing potential inherited risks, and supporting earlier, more accurate diagnoses. Sharing this information with healthcare providers can help guide care decisions, coordinate services, and identify opportunities for earlier intervention. Family health history can also reveal disparities in access to diagnosis and care, reinforcing the importance of equitable, culturally responsive healthcare for every family.
October is National Family History Month
We recognize that cultural stigma, limited access to records, and communication gaps often make conversations about family health difficult. October is a perfect time to start the conversation. Talk to your family about health history today. The more we know, the better we can advocate for our health and the health of future generations.
Explore our videos and resources for practical tips and guidance to help you begin these important conversations with confidence.
Featured Conversations
🎥 Why Knowing Your Family History Matters: Courtesy of Global Genes and the Rare Disease Diversity Coalition (RDDC).
🎙️ Family Talks: From Generations to Genes with Maria Della Rocca, Global Genes & Molly Martzke, National Genetics Education and Family Support Center.
🎙️ Family Talks: Real Stories, Real Families with Kareem Edwards, E.WE Foundation & Heather Gjesvold, Advocate.
- Coming Soon – Our Family Health History Guide
