ZEBRA PROGRAM

Mental Health, Emotional Support & Comfort Care

Welcome to ZEBRA, a program that supports the mental, emotional, and spiritual well-being of families affected by rare diseases. Whether you’re a patient navigating a new or existing condition, or a caregiver supporting a loved one or coping with grief, ZEBRA is here to walk with you.

We offer group meet-ups, workshops, professional development, and community-centered resources that honor the non-linear nature of mental health and wellbeing, healing, hope, and loss. We also recognize that spiritual well-being can provide comfort during seasons of uncertainty. ZEBRA offers prayer and encouragement, referrals to pastors, and opportunities for conversation with faith leaders. Whatever your path, we are honored to walk alongside you with compassion and care.

If you are experiencing severe anxiety, depression, or prolonged grief, we encourage you to speak with a licensed mental health professional. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline. Our Mental Health Resource Center offers additional tools, education, and resources to support your journey.

As part of our commitment to whole-person support, ZEBRA partners with licensed counselors and therapists to help connect families with professional mental health services when additional care is needed.

ZEBRA Peer Connections for Patients with Rare and Complex Conditions

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You don’t have to navigate your rare or complex health journey alone. ZEBRA Peer Connections helps individuals connect with others who understand, share experiences, and find a sense of community. Complete the brief form below to tell us a little about yourself and the type of peer connection you’re looking for. We’ll use your responses to explore potential connection opportunities.

What age group are you in?(required)
What type of peer connection would you be most interested in? Select all that apply.(required)
Acknowledgement(required)
Consent(required)

The Pause Project: A Caregiver Wellness Initiative

The Pause Project provides practical support, education, peer connection, and mental wellness resources to individuals who serve as primary caregivers for children with complex medical needs.

Through The Pause Project, We:
  • Build Supportive Peer Networks
  • Provide Expert Education & Resources
  • Offer Respite Opportunities
  • Support Mental Wellness
  • Strengthen Ties with Local Schools and Communities

💡 Note: Support groups are not a substitute for professional therapy or medical care. If you need more personalized support, talk to your doctor about counseling or other therapies.

The Pause Project Interest Form: This form helps us learn more about you and keep you informed about upcoming opportunities. Your information is confidential.

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Thank you for your response. ✨

I am interested in: (check all that apply)(required)
Acknowledgement(required)
Consent(required)