ZEBRA PROGRAM

ZEBRA is a comfort care & end-of-life solutions program that supports families living with life-limiting diagnoses, medical complexities and special health needs. Our comfort care program addresses physical comfort, daily care, mental, emotional & spiritual support. ZEBRA can assist with resources, intervention, counseling, and bereavement support.


Comfort Care

Comfort care is an essential part of one’s end of life journey. The goals are to prevent or relieve suffering as much as possible and to improve quality of life while respecting the wishes of the dying person and their family. We believe there are four areas of importance when facing the death of a loved one, especially a child – physical comfort, mental and emotional needs, spiritual needs, and practical tasks. We are here to support you. Always remember to consult your healthcare team to make sure these suggestions are appropriate for your situation.

Managing Mental and Emotional Needs

Complete comfort care and end-of-life solutions includes help with managing mental and emotional distress. It is important to treat emotional pain and suffering. Encouraging conversations about your feelings might help. You might want to contact a counselor. You are not alone. If you experience severe depression or anxiety, talk with your healthcare provider.

Spiritual Needs

Comfort care and end-of-life experiences often lead to spiritual needs being just as important as physical concerns. Many people find solace in their faith while others may struggle with the idea of faith or spiritual beliefs. Praying, talking with a pastor or minister, reading scriptural texts, or listening to positive and encouraging music may bring comfort. We are here to help.

Support Groups

You may be nervous when you join a new support group. Participating gives you an opportunity to connect with people who are likely to understand how you may be feeling. You may want to listen at first. Over time, sharing your own ideas and experiences may help you get more out of the group. Whatever you choose, we’re here to support you.

*A support group is not a substitute for regular medical care. Talk to your doctor about participating in a support group. If you think a support group is not a good fit for you, but you need help coping with your condition or situation, talk to your doctor about counseling or other types of therapy.

ZEBRA Support Groups

Online support groups have the potential to improve the access and delivery of support to a wide range of people, including some who would not seek face-to-face support at all. We understand a person’s relationship with a doctor or other medical personnel may not provide adequate emotional support, and a person’s family and friends may not understand the impact of a disease or treatment. ZEBRA hopes to create a space of support among people with shared experiences while bridging the gap between medical and emotional needs.

ZEBRA E-Support Groups are virtual and offers both privacy or anonymity. You can join one of our groups from the comfort of your home. From time to time we may offer educational opportunities, such as a guest doctor, psychologist, nurse or social worker to talk about a topic related to the group’s needs. To protect your privacy, registration for ZEBRA E-Support is required.

Source: U.S. Department of Health & Human Services, National Institute on Aging, https://www.nia.nih.gov | Support Groups, https://www.mayoclinic.org