BEING RARE PODCAST

Welcome to Being Rare, a podcast about navigating life with rare diseases. Being Rare is an online resource hub and community conversations platform. We have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, and special health needs. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Join the conversation by following Being Rare wherever you listen to your podcasts!

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BEING RARE PODCAST LIVE

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Have something you want us to discuss on the podcast? Want to be a guest on the show?

Find us on Facebook and Instagram @beingrarepodcast or send a message from the contact form!

Email us: podcast@theewefoundation.org!