BEING RARE PODCAST

Raw | Unedited | Unscripted

Welcome to the Being Rare Podcast!

Hosted by Sarita Edwards, Being Rare is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful.

Check out our latest episode!

Ep 101. What's happening in May? Myositis Moonwalk, Mother's Day, Mental Health, One Minute Mondays – Being Rare Podcast

In this episode, Sarita talks about – spending Saturday at the US Space and Rocket Center in Huntsville, AL supporting the Myositis Moonwalk – Mother's Day happening Sunday, May 12 – May being Mental Health Awareness Month – the E.WE Foundation's new Mental Health Training and Certification Program- the return of One Minute Mondays – and the passing of the Zachary Thomas Newborn Screening Act in Alabama. Tune in to check out the highlights and updates! — Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
  1. Ep 101. What's happening in May? Myositis Moonwalk, Mother's Day, Mental Health, One Minute Mondays
  2. Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention
  3. Ep 99. Funding Challenges for Small Nonprofits, Research, Scholarships, Inclusion, and More!
  4. Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?
  5. Ep 97. March is Trisomy Awareness Month & Women's History Month

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Email us: podcast@theewefoundation.org