CALENDAR OF EVENTS

Our events connect families, advocates, and professionals across the rare disease and disability ecosystem. Designed to educate, empower, and inspire action, our events are available virtually and in person, and include workshops, webinars, national observances, and global awareness campaigns. Explore our fiscal calendar to discover upcoming opportunities for learning, connection, and advocacy.


Quarter 1 | April – June

April | Child Abuse & Neglect Prevention Month

May | Mental Health Awareness Month

June | LEAP Into Advocacy Summit


Quarter 2 | July – September

July | Minority Mental Health Awareness Month

August | Education & Family Empowerment

September | Newborn Screening Awareness Month


Quarter 3 | October – December

October | Prevention & Health Planning

November | Gratitude & Community Engagement

December | Reflection & Celebration


Quarter 4 | January – March

January | Impact & Accountability

February | Rare Disease Awareness Month

March | Trisomy Awareness Month