Our events connect families, advocates, and professionals across the rare disease and disability ecosystem. Designed to educate, empower, and inspire action, our events are available virtually and in person, and include workshops, webinars, national observances, and global awareness campaigns.
Quarter 1 | April – June
April | Child Abuse & Neglect Prevention
May | Mental Health Awareness
June | LEAP Into Advocacy Summit
Quarter 2 | July – September
September | Newborn Screening Awareness
Quarter 3 | October – December
October | Understanding Family Health History
Quarter 4 | January – March
February | Rare Disease Awareness
March | Trisomy Awareness
