The E.WE Foundation along with several other community organizations joined Madison City Schools and Madison City Council of PTAs for another Mental Health Matters event!

Missed an event? Video recordings are streaming On Demand! Rather listen? Some episodes are available on the Being Rare Podcast!

*This event is approved for 4 CEUs.

LEAP into Advocacy Virtual Summit: Utilizing Social Health and Digital Concepts to Influence Critical Health Decisions

The LEAP into Advocacy Virtual Summit will explore how we, as advocates, patients, and caregivers, use social health and digital concepts to inform and influence critical health decisions. Social health is transforming our approach to healthcare; and digital concepts like telehealth continue to be a crucial tool in expanding how we access care. Social health and digital concepts are critical to maintaining and strengthening our health care workforce.

Join us on Thursday, June 30th, 10am CST to better understand how using social health and digital concepts are influencing critical health decisions. Learn more at

*This event is approved for 1 CEU.

Moms & Mental Health: The Importance of Self Care

Self-care is important to maintaining a healthy relationship with yourself. Self-care is about the things we can do to look after our own mental health. Join us on Thursday, May 19th, 11am CST for a conversation about managing ourselves, motherhood, and our mental health.

Panelists: Stephanie Allen, Licensed Professional Counselor & Mental Health Services Coordinator; Shane’ Jackson, Coordination of Benefits Analyst & Parent Advocate; Dr. Ashley Perkins, Doctor of Pharmacy & Mental Health Advocate; and Parvathy Krishnan, Global Advocacy Alliance Director & Parent Advocate

Join us for a special Mother’s Day edition of the Being Rare Podcast premiering on Sunday, May 8th, 11:00am, CST. Being Rare Podcast welcomes Kate Hart, mom to Hannah, a sweet baby girl diagnosed in utero with Trisomy 18.

*This event is approved for 1 CEU.

Child Abuse & Neglect Prevention

In the US, at least 1 in 7 children experience child abuse or neglect annually. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities, and they are more likely to be seriously injured or harmed by maltreatment. Join us on April 26th, 12pm, CST for a conversation about child abuse prevention, resources, and support.

Panelist: Sallye Longshore, Director, Alabama Department of Child Abuse and Neglect Prevention, The Children’s Trust Fund and Stephanie Wright, Director of Family Services, UCP of Huntsville and Tennessee Valley

*This event is approved for 1 CEU.

Financial advocacy in the context of health involves the ability to assess, understand, and use financial information in ways that support good health and financial outcomes. Understanding Financial Advocacy will explore financial concepts and enhance awareness about best practice financial solutions. Join us on Wednesday, March 23rd, 11:00am CST!

Guest Presenter: Dustin Mayo, Vice President, Retail Market Manager, Synovus Bank

Being Rare Podcast is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022Join us on Rare Disease Day as we discuss advocacy, pageantry, and life as a rare disease patient.

Listen on Monday, February 28th!

*This event is approved for 1 CEU.

Understanding Parent Leadership: What is Parent Leadership and Why Is It Important?

February is National Parent Leadership Month, dedicated to recognizing the important role of parents and caregivers in their homes and community. Join us as we discuss parent leadership and why it is an important component to gaining valuable insight into healthcare and community programs benefiting children and families. Join us on February 25, 9:00am CST.

Panelists: Molly Martzke, Senior Program Manager, Expecting Health and Ebone Kimber, Licensed Master Social Worker, ProDev with EK.