Our events connect families, advocates, and professionals across the rare disease and disability ecosystem. Designed to educate, empower, and inspire action, our events are available virtually and in person, and include workshops, webinars, national observances, and global awareness campaigns.
Beyond the Trisomy Diagnosis: A Two-Part Learning Series on Alopecia Areata
Presented by The E.WE Foundation’s LEAP Learning Series in partnership with Pfizer.
A diagnosis is an important part of a person’s medical story, but it is never the whole story. Individuals and families navigating Trisomy 18, Trisomy 13, Trisomy 21, and other rare or medically complex conditions often face healthcare considerations that extend beyond their primary diagnosis. Access to information about additional health conditions, available treatments, and opportunities for informed decision-making is essential to supporting whole-person care.
Join us for Beyond the Trisomy Diagnosis, a two-part educational webinar series exploring conditions that may co-occur with trisomy diagnoses.
WEBINAR 1 | November 18, 2026 | 11:00 AM CST – Shared Decision-Making with Alopecia Areata
WEBINAR 2 | December 16, 2026 | 11:00 AM CST – Current Treatment Options for Alopecia Areata
Featured Speaker: Reginald L. Reed, MBA, CLSSBB, Pfizer Alopecia Areata Community Navigator, Pfizer Patient Solutions & Engagement – US Specialty Care
We look forward to having you join us as we explore the importance of whole-person care, informed decision-making, and ensuring families have access to information that supports their healthcare journey.
LEAP into Advocacy Hybrid Summit
