CALENDAR OF EVENTS

Our events connect families, advocates, and professionals across the rare disease and disability ecosystem. Designed to educate, empower, and inspire action, our events are available virtually and in person, and include workshops, webinars, national observances, and global awareness campaigns.

Explore our fiscal calendar to discover upcoming opportunities for learning, connection, and advocacy.


Quarter 1 | April – June

April | Child Abuse & Neglect Prevention

May | Mental Health Awareness and Pause Project Event

June | LEAP Into Advocacy Summit


Quarter 2 | July – September

August | Youth Mental Health First Aid Training

September | Newborn Screening Awareness and Pause Project Event


Quarter 3 | October – December

October | Understanding Family Health History

November | Youth Mental Health First Aid Training and Pause Project Event


Quarter 4 | January – March

January | Youth Mental Health First Aid Training

February | Rare Disease Awareness and Volunteer Appreciation

March | Trisomy Awareness and Pause Project Event