Mental Health, Emotional Support & Comfort Care
Welcome to ZEBRA, a program that supports the mental, emotional, and spiritual well-being of families affected by rare diseases. Whether you’re navigating a new diagnosis, managing ongoing care, supporting patients, or coping with grief, ZEBRA is here to walk with you.
We offer group meet-ups, workshops, professional development, and community-centered resources that honor the non-linear nature of mental health, healing, and loss. Together, we journey toward healing, hope, and renewed strength—one step at a time.
You are not alone.
Caring for yourself is not selfish. It is essential. Whether you are a caregiver, parent, advocate, healthcare professional, or someone navigating a rare or complex diagnosis, your well-being matters. ZEBRA believes that mental health deserves the same attention and compassion as physical health. Feelings of stress, anxiety, grief, or depression can become overwhelming, but you do not have to face them alone.
If you are experiencing severe anxiety, depression, or prolonged grief, we encourage you to speak with a licensed mental health professional. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline. Our Mental Health Resource Center offers additional tools, education, and resources to support your journey.
We also recognize that spiritual well-being can provide hope, comfort, and meaning during seasons of uncertainty, grief, or loss. ZEBRA offers prayer and encouragement, referrals to pastors and other faith leaders, and opportunities for reflection and dialogue for both families and professionals supporting those experiencing grief. Whatever your path, we are honored to walk alongside you with compassion and care.
As part of our commitment to whole-person support, ZEBRA partners with licensed counselors and therapists to help connect families with professional mental health services when additional care is needed.
The Pause Project: A Caregiver Wellness Initiative
The Pause Project provides practical support, education, peer connection, and mental wellness resources to women who serve as primary caregivers for children with complex medical needs.
Through The Pause Project, We:
- Build Supportive Peer Networks
- Provide Expert Education & Resources
- Offer Quarterly Respite Opportunities
- Support Mental Wellness
- Strengthen Ties with Local Schools and Communities
💡 Note: Support groups are not a substitute for professional therapy or medical care. If you need more personalized support, talk to your doctor about counseling or other therapies.
The Pause Project Interest Form: This form helps us learn more about you and keep you informed about upcoming opportunities. Your information is confidential.
The E.WE Foundation 