Our team brings together experienced professionals, dedicated advocates, and compassionate leaders to drive our mission forward. Together, we work to improve health outcomes and elevate the voices of families impacted by Trisomy 18 and other rare diseases. Our Leadership Team is composed entirely of volunteer leaders who contribute their time, expertise, and passion to advance our work and impact.
Executive Leadership
Sarita Edwards, DHSc (candidate), MHA, BS, Founder, CEO & Board President
Kareem Edwards, BS, Co-Founder, Strategic Advisor, Board Treasurer, FedEx Corporation
Board of Directors
Shane’ Jackson, STRIPE Committee Chair, Board Secretary, Carelon Health
Kenneth Powe, Board Member, Buffalo Rock Company
Program Advisors
Trinisha Williams, CM, LM, MPH, FACCE, LCCE, LC, President & Founder, Midwifery Collective
Billye Rene Sprague, CRNP, RN, MSN, FNP-C, The Bridge Program, USA Health Children’s and Women’s Hospital
Ashley Perkins, PharmD, Eds, CPh, Co-Founder & Board President, We Matter Too, Inc
The E.WE Foundation 