Our team brings together experienced professionals, dedicated advocates, and compassionate leaders to drive our mission forward. Together, we work to improve health outcomes and elevate the voices of families impacted by Trisomy 18 and other rare diseases. Our Leadership Team is composed entirely of volunteer leaders who contribute their time, expertise, and passion to advance our work and impact.
Executive Leadership
Sarita Edwards, BS, MHA, DHSc Candidate, Founder, CEO, Board President, The E.WE Foundation
Kareem Edwards, BS, Co-Founder, Strategic Advisor, Board Treasurer, FedEx Corporation
Board of Directors
Shane’ Jackson, STRIPE Program Coordinator, Board Secretary, Carelon Health
Kenneth Powe, Fundraising Coordinator, Board Member, Buffalo Rock Company
Vivian Duong, MS, MPH, LEAP Program Coordinator, Board Member, UT Southwestern Genetic Counseling Program
Program Advisory Board & Consultants
Trinisha Williams, CM, LM, MPH, FACCE, LCCE, LC, President & Founder, Midwifery Collective
Ashley Perkins, PharmD, Eds, CPh, Co-Founder & Board President, We Matter Too, Inc
Renie Moss, MPH, Operations Administrator, UAB Cystic Fibrosis Research Center
Billye Rene Sprague, RN, MSN, FNP-C, The Bridge Program, USA Health Children’s and Women’s Hospital
Skilled Volunteers
Loretta Justice, Volunteer Coordinator
Jasmine Hightower, MSW, Peer Connection
2026 Rare Disease (RDDC) Fellow
Victor Ekuta, MD, Morehouse School of Medicine
