WHAT IS RARE DISEASE DAY?
Rare Disease Day is a day to raise awareness of the over 10,000 rare diseases that impact over 300 million people globally! Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose. The National Organization for Rare Disorders (NORD) is the official US partner for Rare Disease Day working alongside sister organization EURORDIS (Rare Diseases – Europe) and 65+ national alliance patient organization partners all over the world. The E.WE Foundation is a proud partner, friend, and supporter of Rare Disease Day! Take a look at our official international partnership page!
Rare Disease Day is observed every year on February 28th (or 29th in leap years)—the rarest day of the year.
WAYS TO GET INVOLVED
SHOW YOUR STRIPES®
The zebra is the official symbol of rare diseases in the United States. In honor of our shared mascot, wear striped clothing and accessories to show our support for the lives impacted by a rare disease. Wearing stripes can start a conversation that helps others learn the facts about the prevalence and challenges of rare diseases. Take a picture of your striped look and share it on social media with the hashtags #EveryoneIsWe #ShowYourStripes and #RareDiseaseDay and let’s make some noise for our herd!
*Check back often for more ways to get involved!