The E.WE Foundation offers programs that address key areas of need—advocacy, emotional wellness, financial education, and community connection—creating a comprehensive framework of care for families and professionals impacted by rare and medically complex conditions.
For families, our programs provide guidance, practical tools, and shared community to support navigation, decision-making, and long-term resilience. For professionals—including nonprofits, educators, healthcare teams, and advocates—our training and consulting services strengthen leadership capacity, ethical practice, and inclusive systems of care.
Our E.WE Community Portal serves as the central access point to these programs. Through the portal, participants can engage in learning courses, peer discussion spaces, program updates, and resource sharing in one coordinated environment.
Grounded in lived experience and informed by evidence-based practices, our programs empower individuals and organizations to make meaningful, lasting impact in the rare disease ecosystem—one family, one leader, and one conversation at a time.
*Access to the E.WE Community Portal is free. Individuals may sign up to request group membership, which allows participation in courses, discussion spaces, and shared resources across our programs.
LEAP PROGRAM
ZEBRA PROGRAM
STRIPE PROGRAM
The E.WE Foundation is an accredited Continuing Education Provider.
LEAP PROGRAM
Focus: Patient Advocacy · Community Education · Health Literacy
LEAP is a comprehensive initiative designed to support families, individuals, and the professionals who serve them by improving health literacy and empowering informed, confident decision-making. Through educational workshops, webinars, and digital resources, LEAP bridges knowledge gaps and equips communities with the tools to navigate rare disease care and advocacy efforts.
Key Features:
- Interactive advocacy training
- Educational modules on navigating rare disease care
- Community empowerment sessions
ZEBRA PROGRAM
Focus: Mental Health · Peer Support · Bereavement · Comfort Care
The ZEBRA Program provides a safe, compassionate space for individuals and families to foster emotional and mental wellness. From peer support to comfort care initiatives, ZEBRA helps communities cope with the psychological impact of life-altering diagnoses and loss. The program promotes resilience, reduces stigma, and offers holistic mental health support.
Key Features:
- Grief and bereavement support
- Mental health resources and referrals
- Self-care and wellness workshops
STRIPE PROGRAM
Focus: Charitable Giving · Financial Assistance · Family Support
STRIPE provides financial assistance and comprehensive support to families affected by Trisomy 18, particularly those facing economic hardship. Beyond emergency funding, STRIPE connects families with counseling, education, and other essential services to promote long-term stability and well-being.
Key Features:
- Emergency and gap funding for Trisomy 18 families
- Resource navigation and support
- Community partner referrals for wraparound services
Camp E.WE
Focus: Inclusive Recreation · Family Connection · Medical Safety
Camp E.WE is a long-term initiative designed to provide a medically safe, inclusive space where children and families living with Trisomy 18—and the professionals who support them—can find joy, rest, and connection. While still in development, this future program reflects The E.WE Foundation’s commitment to creating environments that celebrate every child’s uniqueness.
The goal is to establish a fully accessible, adaptive camp experience—complete with recreational activities, family-centered programs, and on-site medical support—that fosters belonging and lasting memories. Camp E.WE will operate through a sponsorship-based model to ensure financial accessibility for all qualifying families.
Future Highlights:
- Medically supported camp experiences tailored for children with Trisomy 18
- Opportunities for inclusive recreation, relaxation, and family bonding
- A fully sponsored program prioritizing equity and access
Camp E.WE is part of our long-term strategic plan and underscores our belief that every child deserves a place to feel seen, supported, and celebrated.
The E.WE Foundation 