Empowering Equitable Care for Rare Disease Communities
What is Health Equity?
Health equity means everyone has a fair and just opportunity to attain their highest level of health—regardless of race, ethnicity, age, gender, income, education, location, or disability.
For families impacted by rare diseases and medically complex conditions, this principle is not just important—it’s essential. Too often, these families face delays in diagnosis, gaps in treatment, and limited access to resources.
At The E.WE Foundation, we believe in a healthcare system that works for everyone, everywhere.
Our Commitment to Health Equity
We are committed to:
- Ensuring equitable access to newborn screening, early intervention, medical care, and social services
- Eliminating disparities that affect diagnosis, treatment, and long-term care
- Centering the voices of marginalized families and diverse communities
- Advocating for inclusive public policies, research, and data transparency
- Empowering patients and caregivers to become leaders in their care
“No one should be denied quality care because of their background, zip code, or diagnosis.” – Sarita Edwards, CEO & President
Transforming Systems Through Advocacy and Accountability
We stand with the 30 million Americans and 400 million people worldwide living with rare diseases. Through our programs, partnerships, and platforms, we are working to:
- Challenge exclusionary practices in medicine and research
- Uplift patient and caregiver voices in treatment and program design
- Push for fair funding and equitable access in underserved areas
- Promote a culture of inclusion across health institutions and professional training
Health Equity Community Workshop
An immersive education and empowerment workshop focused on understanding and addressing health disparities in rare disease care.
What We Cover
- Systemic bias and social determinants of health
- Policy advocacy and community-led reform
- Inclusive care models and cultural competency
- Tools for navigating inequitable systems
Who It’s For
Parents, caregivers, patients, providers, and allies ready to take action.
Workshop Goal
Equip attendees with the knowledge and tools to:
- Champion health equity
- Foster inclusive practices in care and advocacy
- Reduce disparities through education, collaboration, and commitment
Get Involved
📩 Want to participate in the Health Equity Workshop or partner with us on DEI initiatives? Email us: admin@theewefoundation.org
The E.WE Foundation 