A Global Advocacy Network for Families with Rare Diseases and the Professionals Who Serve Them
Rare Across America is a yearly event that we participate in. We talk to Members of Congress about my disease and stuff they can do to help children like me.
This was our 3rd year and it was online because of COVID. Thank you to our congress people for hearing from us.
The E.WE Foundation is a global healthcare advocacy organization providing resources and support to families impacted Trisomy 18 (Edwards Syndrome) and other rare diseases. View more posts
The E.WE Foundation