Edwards Syndrome is 1 of more than 7,000 rare diseases affecting 25 to 30 million Americans. Edwards Syndrome, commonly known as Trisomy 18, is a rare, genetic, chromosome abnormality affecting 1 in 6,000 births. There is no cure or treatment and statistically only five to 10% of infants born with Edwards Syndrome will live to see their first birthday.
The E.WE Foundation is a 501c3 healthcare advocacy organization supporting families affected by Edwards Syndrome. Through efforts of advocacy, community education, health literacy and public policy, the E.WE Foundation is dedicated to ensuring families have access to resources and information.
To learn more, visit us online at http://www.theewefoundation.org.