Rare Across America

Rare Across America is a yearly event that we participate in. We talk to Members of Congress about my disease and stuff they can do to help children like me.

This was our 3rd year and it was online because of COVID. Thank you to our congress people for hearing from us.

Published by ewefoundation

The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome, commonly known as Trisomy 18.