MENTAL HEALTH RESOURCE CENTER

Any Person. Any Diagnosis. Anywhere.

Living with a rare disease can present emotional and mental health challenges for individuals, parents, caregivers, and siblings. The impact often ripples through families, creating invisible burdens that go unaddressed. Many families report needing mental health support—yet access is limited due to stigma, geographic barriers, or lack of resources.

At the E.WE Foundation, we’re here to change that.

Download our Mental Health & Prevention Fact Sheet

Why Mental Health Matters

Emotional well-being is a protective factor, especially for families managing rare or medically complex diagnoses. A strong mental health foundation:

Reduces caregiver burnout
Increases advocacy capacity
Improves quality of life for the entire family

Whether you’re navigating a new diagnosis, advocating for your child, or balancing care with work and daily life, your emotional well-being matters.

Learning Opportunities for Families & Professionals

We offer educational workshops, training sessions, and resources designed to equip both families and professionals with the knowledge and skills to support mental wellness:

For Families:

Coping strategies for caregivers and siblings
Navigating emotional challenges after a rare disease diagnosis
Building resilience and reducing stress
Peer support and family-centered workshops

For Professionals:

Training for educators, healthcare providers, and advocates on recognizing mental health challenges
Youth Mental Health First Aid (YMHFA) certification through the National Council for Mental Wellbeing (also available for families)
Webinars on trauma-informed care, grief support, and advocacy strategies
CEU-accredited workshops through our LEAP program

MENTAL HEALTH IN ACTION

School & Community Engagement
The E.WE Foundation joined Madison City Schools and the Madison City Council of PTAs for a Mental Health Fair at James Clemens High School, Madison, AL . Alongside community partners, we shared local resources and participated in a panel discussion on technology’s impact on mental wellness, providing actionable tips for families and professionals.

📺 Watch the full panel discussion here:

Awareness Months That Matter

🟩 May: Mental Health Awareness Month – Join the national movement to raise awareness, fight stigma, and support individuals affected by mental illness.

🟦 July: Minority Mental Health Awareness Month – Highlighting unique mental health challenges in communities of color and the importance of culturally competent care.

Need Support?

We proudly partner with licensed mental health providers to offer confidential counseling for Trisomy 18 families. Visit Our Professional Counseling Page to learn more.

Local Mental Health Resources (North Alabama)

The Enrichment Center – School-based mental health counseling program
National Children’s Advocacy Center – Trauma care, advocacy & parenting classes
The Caring House – Grief support services for children and families
Crisis Services of North Alabama – 24/7 emotional support and crisis intervention
Wellstone / NOVA Center for Youth & Family – Screenings and outpatient care
United Way of North Alabama – Dial 2-1-1 for help with local services
NAMI Huntsville – Education, peer support, and provider directory
Partnership for a Drug-Free Community – Prevention and recovery resources

National & Online Resources

For Families & Caregivers

Suicide Prevention Resources

The Jason Foundation – Youth suicide prevention
American Foundation for Suicide Prevention – Education, support & advocacy
National Suicide & Crisis Lifeline: Dial or text 988 (24/7 support)

Digital Safety Tools

Children’s Trust Fund of Alabama – Internet safety resources & prevention programs

Source: Madison City Schools www.madisoncity.k12.al.us | National Institute of Mental Health www.nimh.nih.gov/mymentalhealth | Alabama Department of Child Abuse & Neglect Prevention, Children’s Trust Fund www.ctfal.gov/digital-safety