A Global Advocacy Network for Families with Rare Diseases and the Professionals Who Serve Them
Some days I am just not feeling it..
Early rises for diaper changes, virtual classes and doctor’s appointments.. sometimes I don’t want to be bothered. I’d much rather stay nestled in Mom and Dad’s bed until I’m ready to get up!
Oh well.. guess I’ll get the day started..
The E.WE Foundation is a global healthcare advocacy organization providing resources and support to families impacted Trisomy 18 (Edwards Syndrome) and other rare diseases. View more posts
The E.WE Foundation