TAKING A STAND

There’s a really nice man who makes these standers for children who have trouble walking and standing on their own. The goal is to help with core and leg strength. Because I’m so little, our PT had to cut pool noodles in half to give me extra side support.

The black straps [across the back] supports my legs and butt so I don’t fall. I can practice standing alone, but not unsupervised. The tray supports my upper body. I can also use it for toys or to eat.

The stander is a good way to get stronger. I stand until my knees start to buckle or, until I start to slouch. That’s when Mom knows I’m tired.

Published by ewefoundation

The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome, commonly known as Trisomy 18.