The E.WE Foundation is committed to connecting families affected by Trisomy 18 (Edwards syndrome) with information, resources, and support.
Although our STRIPE financial assistance program is currently limited to families residing in the United States, we recognize that families around the world face significant challenges navigating medical care, finding reliable information, and accessing support.
This short form helps us understand your family’s needs and explore whether we may be able to assist through educational resources, connections, advocacy, or other available support.
Please note: This form is not an application for STRIPE financial assistance, and submitting it does not guarantee that resources or services will be available. Each request will be reviewed individually, and potential support will be considered based on the family’s needs, location, and the resources and support options available to The E.WE Foundation.
Section 2: About Your Child or Family Member
6. What is your child’s first name or preferred name?
Short answer — Optional
7. How old is your child?
- During pregnancy / prenatal diagnosis
- Newborn (under 1 year)
- 1–3 years
- 4–12 years
- 13 years or older
- My child has died
- Prefer not to say
8. Has your child been diagnosed with Trisomy 18 (Edwards syndrome)?
- Complete/full Trisomy 18
- Mosaic Trisomy 18
- Partial Trisomy 18
- Trisomy 18 diagnosis, type unknown
- Prenatal diagnosis; confirmation pending
- I am seeking information about a possible diagnosis
- Other / unsure
Section 3: How Can We Help?
9. What kind of support would be most helpful to your family right now?
Select all that apply.
- Information and education about Trisomy 18
- Help understanding medical information or preparing questions for our healthcare team
- Care planning and navigating care options
- Connecting with other families who understand our experience
- Emotional support resources or counseling referrals
- Finding organizations or services in our country
- Advocacy support or help navigating healthcare systems
- Information about caregiving, family well-being, or bereavement
- Educational resources for healthcare professionals
- Partnership or collaboration with The E.WE Foundation
- Other
10. Please tell us a little more about your family’s current needs.
Paragraph response — Required
What is your family navigating right now? What has been difficult to access? What would make the biggest difference for you? Please share only what you feel comfortable sharing.
11. Have you already tried to access support or resources?
- Yes
- No
- Not sure where to start
If yes, you may briefly describe what you have tried and what happened.
Paragraph response — Optional
12. Is there anything else you would like us to know?
Paragraph response — Optional
Section 4: Consent & Next Steps
13. Please confirm the following.
Required checkbox:
- I understand this is an international family support and resource request, not an application for STRIPE financial assistance. I understand that completing this form does not guarantee support, referrals, or a response within a specific timeframe.
14. Privacy acknowledgment
Required checkbox:
- I understand that the information I provide will be used by The E.WE Foundation to review my request and determine whether relevant resources or support may be available. I will avoid submitting medical records or other sensitive documents unless specifically requested through an appropriate process.
Submit button: Submit Support Request
Confirmation Message
Thank you for reaching out to The E.WE Foundation.
We are grateful that you have connected with our community. Your family’s experiences and needs matter, and we recognize that finding support can be especially challenging when resources are limited.
Our team will review your request and consider whether we can offer relevant educational materials, resource connections, advocacy information, or other available support. While we cannot guarantee assistance, we appreciate the opportunity to learn more about your family’s needs.
Everyone Is We.
The E.WE Foundation
