Empowering Leaders. Strengthening Communities. Advancing Advocacy.
At The E.WE Foundation, we believe that knowledge, leadership, and collaboration are the keys to meaningful change for families affected by rare and medically complex conditions. Our professional development and consulting services equip nonprofits, educators, healthcare teams, and advocates with the tools to lead with confidence, build inclusive systems, and foster stronger, more connected communities.
Professional Advocacy Support
Purpose:
Provide experienced, compassionate support to families navigating complex systems—healthcare, education, and community services. A professional advocate helps families prepare for and participate in conversations with providers, IEP/504 teams, care coordinators, and hospital or insurance representatives.
What We Do:
Offer personalized guidance, meeting preparation, real-time support, and follow-up to ensure families feel informed, confident, and empowered in decision-making.
Format:
One-on-one advocacy assistance, meeting attendance (virtual or in-person where able), document review, care-planning support, and strategy sessions.
Who Should Access This Service:
Parents and caregivers of children with rare or medically complex conditions, young adults transitioning to adult care, and families needing support when navigating healthcare systems, school-based services, or interdisciplinary teams.
Impact:
Strengthens communication between families and institutions, ensures family-centered decision-making, and supports equitable, coordinated care in both medical and educational settings.
Youth Mental Health First Aid (YMHFA)
Purpose:
Equip adults who work with youth—parents, educators, healthcare professionals, social workers, and nonprofit advocates—with the skills to recognize and respond to signs of mental health challenges or crises.
Format:
Instructor-led certification course (virtual or in-person)
Certification valid for 3 years
Who Should Attend:
Nonprofit staff, educators, school-based advocates, PTAs, care coordinators, social workers, and family support leaders working with children and teens impacted by medical complexity or chronic conditions.
Impact:
Participants learn how to identify, understand, and respond to youth mental health needs, promoting safer and more supportive environments for children and teens.
Leadership Strategy & Consultation
Purpose:
Provide organizations, advocacy groups, and community networks with expert guidance in leadership development, program strategy, and cross-sector collaboration.
Format:
One-on-one consultation, small-group workshops, or organizational retreats (virtual or in-person).
Who Should Participate:
Nonprofits, PTAs, healthcare organizations, educators, advocacy leaders, and collaborative networks looking to strengthen leadership, impact, and engagement.
Impact:
Strengthens leadership capacity, enhances program outcomes, and drives sustainable advocacy rooted in equity and lived experience.
E.WE Learning
Purpose:
Deliver engaging, on-demand educational modules and live webinars that promote awareness, advocacy, and leadership in rare disease and across nonprofit sectors.
Format:
Interactive e-learning courses, professional development workshops, and digital resources.
Topics Include:
- Rare Disease Awareness and Advocacy
- Newborn Screening Education
- Family-Centered Care Practices
- Building Inclusive and Equitable Health Systems
- Community Engagement and Nonprofit Leadership
Impact:
Empowers families, advocates, nonprofit professionals, and organizations with practical knowledge and tools to support equitable care and inclusive systems.
Let’s Work Together
Every training, course, or consultation with The E.WE Foundation supports our mission to advance rare disease advocacy.
The E.WE Foundation 