Board of Directors Interest Form

Thank you for your interest in learning more about service on the E.WE Foundation Board of Directors. This form helps us understand your background, interests, and availability so we can determine alignment and next steps. Completion does not constitute a formal commitment.

What Board Service Involves

Term Length

  • Board members serve a three-year term, with the option to renew.
  • Terms are staggered to ensure continuity and leadership development.

Meetings & Time Commitment

  • Quarterly Board meetings (virtual, approximately 90 minutes)
  • One annual in-person or extended virtual planning session (as feasible)
  • Occasional committee meetings or working sessions based on interest and program delivery
  • Time commitment averages 3–5 hours per quarter, excluding special initiatives

Roles & Responsibilities

Board members are expected to:

  • Provide strategic guidance and fiduciary oversight
  • Uphold the mission, values, and policies of the organization
  • Serve as ambassadors for the E.WE Foundation
  • Contribute expertise, lived experience, or leadership perspective
  • Participate in key decisions related to governance, strategy, and sustainability

Fundraising & Financial Support

  • Board members are expected to actively support the financial sustainability of the organization.
  • This includes an annual contribution of $500, leading an annual fundraising effort (suggested at $2,500), connecting the organization with potential supporters and sponsors, and amplifying key initiatives.

Ethics & Accountability

  • Board members must adhere to conflict-of-interest and confidentiality policies
  • Service is voluntary and unpaid
  • All members act in the best interest of the organization and the communities it serves
Submit Your Interest

Thank you for your interest in serving on the E.WE Foundation Board of Directors.

Your willingness to explore board service reflects a commitment to advancing advocacy, equity, and meaningful impact within the rare disease community. Our leadership team will review all submissions. Selected candidates will be contacted to schedule a follow-up conversation to discuss alignment, expectations, and next steps. Thank you again for your interest in supporting the mission of the E.WE Foundation. We value your engagement and look forward to staying connected.
Which board seat are you most aligned with?(required)
Do you have any of the following areas of expertise?(required)
Do you have any professional or financial affiliations that could present a potential conflict of interest?(required)
Are you able to commit to attending quarterly board meetings?(required)
Are you able to actively participate in at least one committee (LEAP, ZEBRA, STRIPE, MARKETING, WAYS & MEANS)?(required)
Board members are asked to make an annual personal contribution of $500 and lead a fundraising effort of at least $2,500. Are you able to meet this expectation?(required)
How comfortable are you with supporting fundraising and partnership efforts?(required)

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