EVENTS & ENGAGEMENTS

Annual Programming Calendar

Throughout the year, the E.WE Foundation hosts and participates in events that connect families, professionals, and advocates across the rare disease community. Our monthly events are designed to educate, empower, and inspire action — featuring virtual workshops, webinars, national observances, and global awareness campaigns. Explore our fiscal calendar to discover upcoming opportunities for learning, connection, and advocacy.

Fiscal Year: April – March

Quarter 1 | April – June

April | Child Abuse Prevention Month
Theme: Building Strong Families

  • Community Vision Forum: Launch the new fiscal year with families, advocates, and partners to align on annual goals and volunteer opportunities.
  • Awareness Campaign: “Building Strong Families” — promoting safe, nurturing environments for children with complex medical conditions.
  • Professional Training Webinar: Recognizing and Responding to Neglect — identifying and addressing neglect among medically complex children.

May | Mental Health Awareness Month
Theme: Caregiver Resilience

  • Caregiver & Family Wellness Webinar: Practical tools for managing stress, anxiety, and burnout.
  • Youth Mental Health First Aid (Quarter 1): Empowering youth advocates and families with mental health literacy and early intervention strategies.

June | LEAP Into Advocacy Summit
Theme: Advancing Rare Disease Advocacy

  • Annual Advocacy Summit: Transforming Knowledge and Innovation Into Real-World Impact — convening families, professionals, and leaders to advance rare disease policy, research, and collaboration.
  • Advocacy Ambassador Recruitment: Engage and train new advocates through LEAP’s yearlong leadership program.
Quarter 2 | July – September

July | Minority Mental Health Awareness Month
Theme: Equity in Access

  • Community Workshop: Health Equity in Rare Disease — addressing disparities and amplifying underrepresented voices.
  • Listening Session: Gathering community insights to inform inclusive advocacy priorities.

August | Education & Family Empowerment
Theme: Advocacy in Action

  • Back-to-School Advocacy Webinar: Guidance for navigating IEPs, 504 plans, and inclusive learning environments.
  • Resource Launch: Educator Toolkit for Rare Disease Awareness — equipping schools to support medically complex students.

September | Newborn Screening Awareness Month
Theme: Early Detection Saves Lives

  • Awareness Campaign: Promoting the importance of early screening and diagnosis in rare conditions.
  • Family Story Series: Highlighting lived experiences through “Screened Early Stories.”
  • Youth Mental Health First Aid (Quarter 2).
Quarter 3 | October – December

October | Prevention & Health Planning
Theme: Family Health Futures

  • Webinar: Know Your Family History — encouraging genetic awareness and proactive health planning.
  • Caregiver Wellness Session: Preventative health practices and sustainable self-care strategies.

November | Gratitude & Community Engagement
Theme: Collective Impact

  • Volunteer Appreciation Week: Celebrating the advocates and volunteers driving our mission forward.
  • Season of Support Campaign Kickoff: Launch of the year-end giving campaign, highlighting family stories and program impact.

December | Reflection & Celebration
Theme: Sustaining the Mission

  • Youth Mental Health First Aid (Quarter 3).
  • Season of Support Campaign Continuation: Encouraging year-end contributions that sustain family programs and community resources.
  • Foundation Year-in-Review Video: Sharing milestones, community voices, and impact highlights.
Quarter 4 | January – March

January | Impact & Accountability
Theme: Measuring Progress

  • Community Impact Report Release: Showcasing program outcomes, family reach, and advocacy milestones.
  • Strategic Outlook Session: Preview of the upcoming year’s goals and collaborations.

February | Rare Disease Awareness Month
Theme: Global Advocacy, Local Action

  • Rare Disease Day (Feb 28/29): Global awareness campaign amplifying the voices and resilience of those living with rare conditions.
  • Family Advocacy Webinar: Strategies for caregivers to engage in research, policy, and leadership.
  • Policy Brief Release: Annual summary of rare disease policy priorities and progress.

March | Trisomy Awareness Month
Theme: Advocacy Through Unity

  • Trisomy 18 Awareness Campaign: Educating the public and promoting compassionate care.
  • Trisomy 18 Coalition Town Hall: National dialogue with families and professionals on care innovation and advocacy.
  • Youth Mental Health First Aid (Quarter 4).