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The E.WE Foundation

A Global Advocacy Network for Families with Rare Diseases and the Professionals Who Serve Them

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Category Archives: Uncategorized

1, 2, FREDDY’S COMING FOR YOU

Posted byewefoundationMay 26, 2022June 3, 2022Posted inUncategorized

JUST CHILLIN’

You know… I’m just chillin’.. getting rolled out to my Mom during car line pick up.. I’m cool.. That’s the post!

Posted byewefoundationMay 5, 2022June 3, 2022Posted inUncategorized

KINDERGARTEN, HERE I COME

Today we visited kindergarten. We saw the library and lunch room. I don’t know who my teacher is but we got to visit one of the classrooms. Look at this super cool shirt I got! Watch out Rockets, here I come!

Posted byewefoundationMay 4, 2022June 3, 2022Posted inUncategorized

Inclusive Playgrounds

Playgrounds for kids like me are important because I want to play too!

Posted byewefoundationApril 5, 2022Posted inUncategorized

Happy Birthday to Me!

I turned 5 years old! That’s it. That’s the post.. Happy Birthday to me! 🥳

Posted byewefoundationMarch 28, 2022Posted inUncategorized

I Did A Thing..

So, today I did a thing.. I crawled. That’s all.

Posted byewefoundationMarch 4, 2022March 5, 2022Posted inUncategorized

ANOTHER DOCTOR’S APPOINTMENT

I have been home with Mom the past 2 days because I wasn’t feeling good. My ear is draining and my nose is runny. I had a little fever too so we saw the doctor. The doctor did a test for COVID and flu – I didn’t like it. They put this stick thing upContinue reading “ANOTHER DOCTOR’S APPOINTMENT”

Posted byewefoundationFebruary 16, 2022February 19, 2022Posted inUncategorized

CHECK OUT MY NEW PLAY AREA

I got a new play area! I started rolling all over the place! I can sit up by myself and I can get on my hands and knees and not fall. My Mom got me this really big “playpen” – I say play area because playpen sounds like it’s for a baby – so IContinue reading “CHECK OUT MY NEW PLAY AREA”

Posted byewefoundationFebruary 16, 2022Posted inUncategorized

Happy New Year!

Happy 2022! A few days after the new year I was admitted to the hospital. I had to have a lot of procedures and I couldn’t eat any foods. I was there 4 days! I’m not sure if I was scared because my Mom was there too. My Dad was at home with my brothersContinue reading “Happy New Year!”

Posted byewefoundationFebruary 16, 2022Posted inUncategorized

Christmas

We made Christmas ornaments at school! This was my first time making an ornament with my friends in the classroom! My sister helped me hang it on our tree!

Posted byewefoundationFebruary 16, 2022Posted inUncategorized

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The E.WE Foundation | PO Box 6391, Huntsville, AL 35813 | IRS approved 501(c)(3) | EIN 84-2765554 | Copyright ©2019-2025. All Rights Reserved.

The information provided by the E.WE Foundation is for educational and informational purposes only and is not intended to replace the advice of a physician or other qualified medical or social service professional.

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