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The E.WE Foundation

A Global Advocacy Network for Families with Rare Diseases and the Professionals Who Serve Them

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Author Archives: ewefoundation

I’m Chillin’.. That’s All

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

I’m Sick.. Or Am I

The school called my Mom because I wasn’t acting normal. I had a little runny nose and I ate a big breakfast so I wasn’t hungry at lunch. I think the nurse called my Mom like 3-4 different times. Mom said she would just come pick me up, just to make sure… I played themContinue reading “I’m Sick.. Or Am I”

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

I Bit A Muffin

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

They Thought I Was Sleep

Nope!

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

The Mask

So… this whole mask thing just isn’t working for me.. I know I need to wear one but I can’t. They’re too big for my face and anything that blocks my airway even a little bit makes me not be able to breathe good. My Mom got this one from a lady she knows. ItContinue reading “The Mask”

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

I Started School

I’m not really sure how I’m supposed to feel about starting school. It’s a new adventure that I get to wake up early for. I’m away from my Mom all day. It’s not terrible, it’s just different. I’m going 5 days a week. I get there at maybe 7:35 in the morning. We play andContinue reading “I Started School”

Posted byewefoundationSeptember 24, 2021September 24, 2021Posted inUncategorized

Self Care

We all deserve a little self care from time to time..

Posted byewefoundationJuly 30, 2021July 30, 2021Posted inUncategorized

Happy and I Know It..

Room Takeover.. I love hanging out in my sister’s room!

Posted byewefoundationJuly 25, 2021July 25, 2021Posted inUncategorized

The Snuggler

Nothing like a nap with my sister!

Posted byewefoundationJune 12, 2021Posted inUncategorized

Peek-A-Boo

Doctor appointment shenanigans! I was being silly while we waited for the Orthopedic doctor to come in the room. I had an ultrasound on my stomach and a xray. They showed a new symptom called hip dysplasia that we just found out about but I’ve had it since birth. The doctor asked my mom ifContinue reading “Peek-A-Boo”

Posted byewefoundationJune 12, 2021Posted inUncategorized

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The E.WE Foundation | PO Box 6391, Huntsville, AL 35813 | IRS approved 501(c)(3) | EIN 84-2765554 | Copyright ©2019-2025. All Rights Reserved.

The information provided by the E.WE Foundation is for educational and informational purposes only and is not intended to replace the advice of a physician or other qualified medical or social service professional.

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