The E.WE Foundation is an IRS-approved 501(c)(3) nonprofit global network for families affected by Trisomy 18 and other rare diseases, and for the professionals who serve them. We are committed to transforming the rare disease landscape and bridging the gap between diagnosis and care coordination.
Our Mission
To provide resources and practical support to families affected by Trisomy 18 (Edwards Syndrome) and other rare diseases, while reshaping medical perspectives through advocacy, education, and public policy. We are equally committed to equipping healthcare professionals with education and guidance and driving systemic change through awareness initiatives.
Our Vision
A world where all families affected by Trisomy 18 and other rare diseases have equitable access to quality healthcare, early intervention, and essential social services.
Our Core Values
We believe every individual—especially those facing chronic or terminal illness—deserves immediate and unbiased access to:
- Economic and emotional support
- Quality of life solutions
- Comprehensive medical care
- Necessary healthcare resources
We also believe in supporting the professionals who guide and care for these families, recognizing their critical role in improving outcomes and reducing disparities.
Our Commitment
The E.WE Foundation empowers families and healthcare professionals by providing equitable access to:
- Care coordination
- Mental health and wellness support
- Health and financial literacy, and assistance
- Rare disease education and awareness
- Professional guidance and training to improve patient care and outcomes
We bridge the gap between diagnosis and care, ensuring no family or professional walks this path alone.
The E.WE Foundation 