A Global Advocacy Network for Families with Rare Diseases and the Professionals Who Serve Them
Not sure where I’m going or how I’m going to get there, but I’m outta here! I figured out how to wiggle my way from my chair straps. I surprised everybody when I raised up, on my knees, and peeked over the top of my chair..
Mom was not happy..
The E.WE Foundation is a global healthcare advocacy organization providing resources and support to families impacted Trisomy 18 (Edwards Syndrome) and other rare diseases. View more posts
The E.WE Foundation