Due to COVID, I was not able to start school in April as planned; but I was able to start in August. I really didn’t know what to expect because I’ve never been to school before. Because of my “condition”, I couldn’t go to “regular” daycare or school so my Mom stopped working and stays home with me.

When I was 2 years old, we found out about a program through our school district for special needs kids. After a few meetings, with a lot of folks, I was accepted. The program is really advanced for me but I like it. All of the other kids are bigger. They walk and talk. They’re not “a baby”. I was scared at first but then I realized, I’m not a baby either. I’m a little guy who is smaller than all of them. I don’t walk or have words; but, I am not a baby!

This is one of the first days of school. I listen to the morning song everyday. We do the art projects; and if I’m awake, we log on for live instruction time with the class. I get “private” instruction twice per week. I also get PT, OT, and speech one day a week each.

What can I say? I am a big boy who goes to big boy school!

Published by ewefoundation

The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome, commonly known as Trisomy 18.