COVID-19 has taken over the world! We have been quarantined since March 13. My brothers and sister are doing school work at home. Even my big brother is home from college. It’s fun having everyone home but it’s not so fun being on lock down.. The recommendations are to hand wash, be socially distant, and wear a face mask. We enjoy the sun from our back porch; and some times we take a drive. Overall, we are sheltered in place, literally!

Many of my annual specialty appointments were cancelled. The hospital called saying we should not come in. One appointment was through TeleHealth via Zoom. I had my 3 year old check up in town but that was it.

I was supposed to start school on April 6 but COVID stopped that. I am getting online instruction like my brothers and sister. My Mom is really focusing more on my PT/OT and speech skills; especially since I’m not receiving services right now.

Hopefully COVID will soon pass and things will get as close to normal as possible.

Published by ewefoundation

The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome, commonly known as Trisomy 18.