The E.WE (/ē/·/wē/) Foundation provides global resources and support for families affected by Trisomy 18 (Edwards Syndrome) and other rare diseases, and for the professionals who serve them.
Courtesy of WLRH | Huntsville Public Radio
It’s that time of year again — when generosity turns into real, tangible support for families navigating Trisomy 18 and other rare diseases. Your gift fuels the programs at the heart of our mission — LEAP, ZEBRA, and STRIPE — bringing education, emotional care, and direct assistance to families who need it most. Help us reach our $25,000 goal and stand with the families we serve.
Elijah Wayne Edwards, Full Trisomy 18, 3/28/17 –
WHAT IS TRISOMY 18?
Trisomy 18, or Edwards Syndrome, is a life-limiting genetic condition caused by an extra copy of chromosome 18. This disrupts typical development, leading to complex medical challenges. While rare, the diagnosis touches thousands of families each year with profound impact.
WHAT IS A RARE DISEASE?
A rare disease (or orphan disease) affects fewer than 200,000 people in the United States. There are over 10,000 rare diseases collectively impacting 30 million Americans, many of whom are children.
OUR CORE PROGRAMS
The E.WE Foundation is proud to be an accredited continuing education provider.
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The E.WE Foundation 