PROGRAMS

LEAP is an instructional resource program promoting health literacy, community education, and patient advocacy. The LEAP program focuses on optimizing health and social service access to improve the overall well-being of individuals, families, and communities. The E.WE Foundation is an approved Continuing Education Provider.

ZEBRA is a comfort care program offering support and end-of-life solutions to families living with medical complexities. Our comfort care program addresses physical comfort, daily care, mental, emotional & spiritual support. ZEBRA offers resources, intervention, counseling, and bereavement support to assist with addressing these needs.

STRIPE is an economic assistance program designed to help with the financial burden associated with caring for Trisomy 18 infants, children, and adults. Families facing economic hardship can submit a request for assistance.



CAMP E.WE

CAMP E.WE provides a place of fun and relaxation for children and families affected by Edwards Syndrome and other rare diseases. Specifically designed for individuals with medical complexities, CAMP E.WE offers a place of belonging in a medically inclusive environment. CAMP E.WE is a sponsorship program. All families will attend CAMP E.WE free of charge.