Madison City Schools hosts community mental health fair

WHNT News 19 | Madison Neal | September 13, 2021

MADISON, Ala. – The Madison City Schools mental health coordinator says the COVID-19 pandemic has brought mental health challenges for students. The school district is bringing attention to the importance of students’ mental health through the Mental Health Matters Health Fair happening tomorrow. Madison City Schools Mental Health Coordinator Stephanie Allen says students are facing challenges today that they’ve never had to face before. Read the full article.


What Does “Care Team” Mean To You?

AllStripes | Taylor Kane | August 18, 2021

Four members of the rare disease community describe their experiences with coordinated health care. A care team is a group of health care professionals who work collaboratively with each other and their patients to deliver the highest-quality care possible. Care teams combine medical professionals from multiple different disciplines, such as primary-care providers, nurses, specialists and mental health professionals. Read the full article.


Support: ‘There’s no right or wrong way to go about it’

AllStripes | August 9, 2021

Hey, Check This Out! is a weekly list of content curated with the rare disease community in mind. Sarita Edwards, founder and CEO of Everyone Is We, is also the host of “Being Rare,” a “community conversations platform bringing awareness and exposure to several different topics,” including rare disease. Edwards alternates between bite-size and full-length episodes on topics like balance, shifting resentment into gratitude and expectations from health-care professionals. A July 12 episode is called “One Minute Monday – Support” and manages to include several profound, actionable pieces of advice in just 60 seconds. Read the full article. Listen to the podcast episode – Support.

Awesome Moms of Huntsville: Sarita Edwards

Rocket City Mom | May 10, 2021

Huntsville, AL. One of the beautiful things about parenting are the big impacts that our tiny humans have on our life. For Sarita Edwards, her youngest child changed the course of her career and passions, inspiring her to create a 501c3 nonprofit to benefit other children that face similar struggles to what her son faces with a diagnosis of Edwards Syndrome. Read below to find out more about Sarita’s journey as a healthcare advocate and why we think she’s an Awesome Mom of Huntsville! Read the article…

March is Trisomy Awareness Month

WSFA 12 News | March 3, 2021

Montgomery, AL. WSFA News Anchor Tonya Terry sits down with Kareem & Sarita Edwards, parents to a Full Trisomy 18 child and founders of the E.WE Foundation. Watch the interview

Special Needs Lawyer Christine Matus Speaks With The E.WE Foundation Co-Founder Sarita Edwards

Press Advantage | January 4, 2021

Toms River, New Jersey — Recently, Christine Matus, Esq., founding attorney of The Matus Law Group, had an insightful conversation with Sarita Edwards, co-founder of The E.WE Foundation, a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome. The foundation was started by Ms. Edwards and her husband, Kareem, after their son Elijah Wayne was prenatally diagnosed with Full Trisomy 18, or Edwards Syndrome. Read full story…

Edwards Family honored with city coin presentation

by John Few | Madison Record | Published Wednesday, March 18, 2020

MADISON – A family who was selected as a finalist for the 2020 Madison’s Family of the Year was honored last week by the city council. The Edwards family, consisting of Kareem and Sarita Edwards, along with their children Josiah, Jeremiah, Elijah, Rian, and Jeffrey, were presented a city coin by Madison City Council president Steve Smith. Read full story…

Steve, Alice, Leah and Ben Lessmann named Madison’s Family of the Year

by John Few | Madison Record | Published Sunday, January 26, 2020

MADISON – The city of Madison has a new family ambassador. The Lessmann family was named the 2020 Madison Family of the Year on Sunday. Steve, Alice, Leah and Ben Lessmann were recognized during a ceremony at city hall Sunday afternoon. They were one of three finalist families to be nominated for the annual honor.

The other families were the Detulleo family: Glenn and Jen Detulleo with the three children, Ebba, Berlin, and Benham; and the Edwards family: Kareem, Sarita, Jeffrey, Rian, Josiah, Jeremiah, and Elijah. Read full story…