I’m doing better with masks. Still not my favorite thing and I’ll only keep it on for a short time. My siblings had doctor’s appointments today and I had to tag along..

Mom had to knot the straps for the mask to fit my face.. Did I say, I’m not a fan?

🙄.. I’m not a fan..


Due to COVID, I was not able to start school in April as planned; but I was able to start in August. I really didn’t know what to expect because I’ve never been to school before. Because of my “condition”, I couldn’t go to “regular” daycare or school so my Mom stopped working and stays home with me.

When I was 2 years old, we found out about a program through our school district for special needs kids. After a few meetings, with a lot of folks, I was accepted. The program is really advanced for me but I like it. All of the other kids are bigger. They walk and talk. They’re not “a baby”. I was scared at first but then I realized, I’m not a baby either. I’m a little guy who is smaller than all of them. I don’t walk or have words; but, I am not a baby!

This is one of the first days of school. I listen to the morning song everyday. We do the art projects; and if I’m awake, we log on for live instruction time with the class. I get “private” instruction twice per week. I also get PT, OT, and speech one day a week each.

What can I say? I am a big boy who goes to big boy school!


We decided to hike a water fall one Saturday; just to get out of the house. We drove about an hour or so away, packed lunches, and had a cooler filled with water for the trip. We walked trails and because the water was low, the rocked bottom of the riverbanks. We had to climb a lot of steep stairs to get to the bottom. It was hot but fun. I could feel the water spritzing my face as the winds blew just a little.


My big brother is in college. He is a senior. He is studying strength, performance, and conditioning in the kinesiology program. When he’s home, he helps me with my therapy. I had just gotten my wheelchair. Trying to get some strength in my arms, he would push me away and let me pull myself back to him. After a few reps (that’s workout talk), I was pooped!


There are some strange new things happening in 2020. One of those things is masks. Because of COVID, we have to wear masks if out in public. We have been quarantined since March; not going ANYWHERE! My Dad goes to work. My Mom goes to the store. The rest of us – the kids – stay home all the time. Even my big brother was home from college from spring break in March until he went back in August.

We decided to go paint rocks one Saturday morning. It was outside the fire house and everyone had on masks. Mom had a mask for me but I wasn’t having it. The weather was nice with a little breeze but the mask was too much. I guess I’ll go back to staying home if I have to be covered every time I go out. It was not fun.


I’m not really sure why I’ve become fascinated with my toes.. A few short years ago, I couldn’t even lift my leg up this high because my hips were so stiff. Somehow, my toe has made it’s way to my mouth.. and, this particular day, I couldn’t stop!