The Mask

So… this whole mask thing just isn’t working for me.. I know I need to wear one but I can’t. They’re too big for my face and anything that blocks my airway even a little bit makes me not be able to breathe good.

My Mom got this one from a lady she knows. It fits better than any other one I’ve tried but it’s still too big. Mom says as long as everyone around me has on a mask I’m okay. She still won’t let me go anywhere though..

I Started School

I’m not really sure how I’m supposed to feel about starting school. It’s a new adventure that I get to wake up early for. I’m away from my Mom all day. It’s not terrible, it’s just different. I’m going 5 days a week. I get there at maybe 7:35 in the morning. We play and sing and learn stuff. I see 3 therapy people – speech, PT, and OT. We go outside too and I like the swing. We start packing up our stuff around 1:45 I guess and my Mom comes back to get me at like 2:10pm.

It’s a long day especially when you’ve been at home for over 4 years. Here’s me on the first day with my teacher. I think I have to go everyday forever..

Here’s me after Mom picked me up. I’m pooped!


Doctor appointment shenanigans! I was being silly while we waited for the Orthopedic doctor to come in the room.

I had an ultrasound on my stomach and a xray. They showed a new symptom called hip dysplasia that we just found out about but I’ve had it since birth. The doctor asked my mom if I had Trisomy 18 and said he didn’t think we needed to do anything.

I heard mom tell dad, “I knew when he asked me if Elijah has Trisomy 18 he wasn’t going to do anything”. You wanna know the funny thing? I knew it too.

My Brother Graduated!

It’s been over a year since we actually attended an event. With COVID and all, we were really being careful not to be in and out of places. Me and my brothers and sister really didn’t go anywhere. Dad went to work and Mom went for groceries. I think she did a lot of pick up so she didn’t have to go inside.

I know a lot of people miss seeing us but we have to be careful because of, well.. me. I have a brother with asthma who my mom & dad wanted to protect too. But, they really didn’t want me to get sick.

My biggest brother graduated college in May. We were happy it was outside because we really wanted to go. It was a 4 hour drive and for May, it was really chilly. I had my wheels and a new canopy thing to snap on the top. I was pretty fly for a kid in a wheelchair!

We had fun! On the way back home, we stopped and saw some family. We did the drive by thing though because we’re still social distancing but at least we stopped by.

This is a picture of us at the end of the program. We took our masks off just for the picture. Well, I never had on one.. I don’t like them, I won’t keep it on 😋.