Hi! My name is Elijah Wayne Edwards. Some call me E.WE. Today, I am 4 years old. I have a rare, genetic, chromosome abnormality called Edwards Syndrome. This is my Full Trisomy 18 journey!
When your sister is tired of wiping your nose…
The change in the weather has my sinuses and allergies all over the place. From sneezing and runny nose – to – stuffy nose and congestion..
I’ll be glad when it’s over!
Sound check.. Elijah live on set..
Okay.. I don’t mean to brag about all this swag.. but my first ever school picture has me looking pretty fly.. I don’t know why I got my hands up like this but oh well.. Check out that ponytail!
You know the weather is changing when Mom pulls this thing out. Me and my brother Jeremiah have to use it.. I think Dad used it one time too.. Man, it makes me sleepy sometimes.
Who doesn’t love bubbles?!!
I hate this nose sucker thingy but it clears my nose.
This was the day we found out that we didn’t have to wear masks anymore in our schools. The email came on Friday and the new plan started on Monday. Mom said I wasn’t going back if everyone can take their masks off. I stayed home Monday, Tuesday, and Wednesday. We got another email on Tuesday that said masks were back required. Mom already had plans to talk to the school on Wednesday so I stayed home until after that meeting.
I went back to school Thursday. Mom says I can keep going as long as masks are required. If it’s lifted again, Mom says I’ll do a virtual option for learning but have in-person services.
I guess I can live with that!
Okay.. so maybe not a billboard.. but I’m on a retractable banner.. Man, I’ve come a long way!
I love him!