I was born weighing 5lbs, 11oz. That’s small compared to my brothers and sister. After 3 days of very little nutrition, I went home weighing 4lbs, 11oz. I probably wore a newborn diaper the first few months of my life. I remember celebrating when I finally reached a size 1.

Now weighing a little over 20 pounds, at 3 years old, I need a 3½. A 3 is too small; a 4 is too big. Slow growth is still growth.

Side note: My sister twisted my hair in this picture. 🤪

Published by ewefoundation

The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome, commonly known as Trisomy 18.